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Children's Privacy Statement

Children's Privacy Statement

What is this about?

We must keep your information safe – things like your address, date of birth and phone number, health info. We collect and use information for all kinds of reasons, and law tells us exactly what we can do with it.
We collect information about you, and it’s our job to tell you how we will collect the information, how we will record it and how we will use it. This notice is us telling you. There are some terms you may not have heard before:

Data controller: This is the company or person who decides who information is managed or used. In this case, it is us.

Data processor: This person or company processes information for the data controller.

Data protection officer (DPO): This person makes sure we do everything the law says. Our DPO is Michael Pollington, Lead for Information Technology.

Personal data: This means any information that can be used to identify someone, such as your address and date of birth.

Who looks after my information?

ACE are the data controller of your personal information – we look at how and why your information is collected and used.
Sometimes we must give your information to other people, such as the government or others dealing with your care. But we will only share information if it is necessary, for a good reason. When your data is given to someone else, they must look after it and keep it safe.
Why do we collect and use your information?

We will only collect your information to carry out health and social support. When we have collected it, here is how we use it?

  • To get in touch with you and your parents.
  • To support your health needs, monitor and report on your progress.
  • To provide appropriate care and support whilst at home or one of our clinics for example attending a party.


What information do we collect?

Your personal information i.e. your name and address.
Your medical information including special conditions or allergies you have that we need to know about to keep you safe. Assessment information based on your progress.

Why do you use Photographs and Videos?

We use photos to show progress or give examples. Videos help show progress and allow appoints over video call.

Do I have to provide information?

As part of your care, we do need to collect information. We have a lawful basis for doing so and can answer any questions you have.

Do my parents need to be involved?

If you are competent and able to understand the repercussions of approving access to your data, we would expect any consent to be provided by you. A general rule we use is 13 years and over, but this can vary. But even if you are competent, your parents can be involved. It’s your choice.
We will always let you know what we need your information for.

How long will we keep your information?

We do not keep it forever, only for as long as we need it to help you and us manage our services.

Is my information shared?

We will only share information with others dealing with your care or if there is a lawful basis that demands us to. We may share information with:
Essex County Council –
Allied Health Professionals Suffolk -
Colchester Hospital University NHS Foundation Trust -
Essex Partnership University NHS Foundation Trust -
Virgin Care Childrens Services Essex -
East of England Ambulance Service -
St Helena Hospice -
Hertfordshire Partnership University NHS Trust –
Provide Community Interest Company –
Essex Police -
Essex Coroners Office -
Synnova Business Services Ltd
Capsticks –
Information Commissioners Office –

Sometimes we have to share your information, but don’t worry, the information is very safe, and your information won’t get lost or given to anyone who shouldn’t have it.
What are my rights?

You (and your parents if applicable) have the right to:

  • Be told how we use your information.
  •  Ask to see the information we hold.
  • Ask us to change information you think is wrong.
  • Ask us to remove information when it is not needed anymore.
  • Ask us to only use your information in certain ways.
  • Tell us you do not want your information to be processed.


If you are worried about how we use your information, you can speak to the staff or our DPO, who will be able to help you and answer any questions that you have. If you are not satisfied with the outcome or wish to make a complaint, please contact us on 0800 819 9030 or email

If you want to speak to somebody not at ACE, you can call the people who look after information law called the Information Commissioner’s Office (ICO), on 0303 123 1113 or using their live chat.
I would like to know more.
If you or your parents\guardians would like to find out more information about how we collect, use and store your personal information, please visit our

Three important things to know:

  • The law allows us to use your information to help you and to help us do our job.
  • We may share your information with others, but only when we really need to.
  • If you need any more information, please contact us on email
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